Patient Advocacy - Rare Disease, Materials Review, and Insights

May 24, 2018Case Study

A leading pharmaceutical organization’s patient advocacy team was tasked with securing insights and perspectives from a group of global patient advocates located in six different countries about a newly approved drug therapy and its related patient education materials. The team had already established an initial relationship with these individuals at a live meeting earlier in the year, and they wanted to keep the conversation going through a virtual advisory steering committee. Specifically, this ongoing advisory board would provide direction and guidance on the pre-market development plans regarding a new treatment for a rare disease, inclusive of all factors that might impact program milestones in preparation for approval and launch.